Tag: chronic illness

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From Level 5 to Thriving: My Kidney Recovery Journey

Written March 6, 2025

Hello Dear Readers,

Ah, the quarterly nephrologist appointment—an event marked on my calendar like a mini health report card. Today was the day.

Once upon a time (and not in a fairytale way), my kidneys decided to stage a dramatic exit, dropping to level 5. For those unfamiliar with the kidney hierarchy, level 5 means you’re not just playing the waiting game—you’re officially in line for a transplant. That’s when my recovery story began.

While waiting for a kidney that might never come, the doctors handed me a to-do list. First up: peritoneal dialysis. That meant getting a catheter—a thin, flexible tube—implanted in my abdomen. My wife, ever the rockstar, took on the role of my personal dialysis technician, administering treatments four times a day. Since dialysis waits for no one, she had to put her job on hold. Meanwhile, I was also dealing with double vision thanks to a stroke, just to keep life extra interesting.

Next on the list? A complete dietary overhaul. Protein—limited. Dairy—cautioned. Even seemingly harmless greens—monitored. And salt? Not a big loss, since we’ve never been big fans anyway. But the adjustments weren’t easy. Every meal felt like a science experiment in portion control and kidney-friendly nutrition.

Then, one day, my doctor hit me with a plot twist: “Well, your kidneys are somehow recovering.” Just like that, dialysis was out, the catheter came off, and my wife could return to work. We stuck to the diet, kept up with regular check-ups, and—miraculously—my kidneys climbed back up to level 3. No more waiting lists. Just a whole lot of monitoring.

That’s why I wear a special watch that tracks everything from my blood pressure to my heart rate. I also keep an eye on my weight because, with my kidneys, even small fluctuations can mean trouble. And speaking of health habits—my wife had the brilliant idea of introducing exercise. At first, even walking with a walker felt like an uphill battle. But we stuck with it. Over the years, the walker turned into casual strolls, which turned into steady jogging. Now, I run. A lot. And somewhere along the way, I traded in excess fat for a leaner, healthier body.

Of course, I still have to be extra cautious. A simple flu or cold can throw my whole system into chaos. But for the most part, I’m in control.

As for today’s appointment? Smooth sailing. My nephrologist gave me the green light—no major concerns, no urgent changes. I did bring up a small worry about my blood pressure occasionally dipping too low, but since my averages are stable, it’s a ‘wait and see’ situation.

The only hiccup? The waiting room. Nearly an hour before I got called in. But hey, patience is a virtue, right? Plus, I got my quarterly visit checked off without any surprises.

Next appointment? Another Wednesday—aka my running day. No problem, I’ll adjust my schedule accordingly.

For now, I’ll keep doing what I’ve been doing. Because somehow, against the odds, it’s working.

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 Snow Day Struggles: Running Plans Thwarted, but Perspective Gained

Written February 19, 2025

reviewed 3/2

Hello Dear Readers,

Well, there goes my run—canceled, thanks to a generous overnight delivery from Mother Nature. Snow blanketed everything, and with temperatures stubbornly hanging below freezing, it’s not melting anytime soon. Schools across Nashville have shut their doors, throwing parents into chaos. Do they brave the roads and head to work, or do they scramble to find last-minute childcare? The great snow day debate. It’s a logistical nightmare for many, but keeping kids safe comes first.

For us, though? Not exactly a crisis. My wife works from home now, a far cry from her former 80-hour-a-week, always-on-the-move lifestyle. She used to thrive on that pace—until I nearly died from a brain stroke. That changed everything. She still brings it up sometimes, but I know there’s a lot she doesn’t say. She doesn’t need to. The shift in her priorities says it all. These days, she avoids crowded spaces, dodges anyone who so much as sniffles, and keeps a close eye on me. To most people, I probably look fine—no obvious signs of past medical issues. But my kidneys are still compromised, and something as minor as a cold could spiral into something serious. My wife knows that. And she never forgets.

Truthfully, I don’t blame her. I worked hard—really hard—to regain as much function as possible. The last thing I want is to put my family through that kind of fear again. Once was more than enough.

Remote work has been a game-changer for her. Some people hate it—too many distractions, not enough structure. But for her? It’s perfect. She thrives on creating processes, developing automation, and solving complex problems that most people wouldn’t even know where to begin. Nothing really breaks her focus. Well, almost nothing. The fear of my near-death experience still lingers in the background, even if she doesn’t always talk about it. Instead of letting it paralyze her, she adapted. If she can’t erase the fear, she can at least manage it—and working from home is part of that strategy.

As for me, I have mixed feelings about today’s forced break. On one hand, I wasn’t exactly excited about an hour-long run in below-freezing temperatures. On the other hand, I don’t like missing scheduled runs. Skipping throws off my rhythm, and I know how easily one missed workout can turn into two, then three. But if I can’t run, I can at least make myself useful.

Shoveling it is. Not the full driveway—that’s asking too much—but enough to clear a path for any brave delivery drivers attempting to make their rounds. Amazon doesn’t care about the weather, and I’d rather not have packages stranded in a snowbank. It’s not the workout I planned, but it’s still movement, and at least it gives me an excuse to step outside.

So, no run today. But I’ll survive. And hopefully, so will my perfectly timed book order.

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A Walk to the Doctor’s Office (and a Well-Earned Cupcake)

Written February 4, 2025

Hello Dear Readers,

It’s that time of year again—my annual checkup with my general practitioner. Not my nephrologist this time, just the standard “let’s make sure nothing unexpected is brewing” kind of visit. Although, if I’m being honest, “annual” checkups feel almost quaint in my world. Thanks to my kidneys, I’m on a much more frequent schedule.

When we bought this house, my wife and I made sure we had all the essentials within walking distance—our dentist, doctor, and a few favorite spots for coffee. It makes life easier, and today, it means my appointment is just a short stroll away. The weather isn’t as pleasant as yesterday, but it’s decent enough. Besides, I won’t be outside long, so why complain?

There’s something oddly comforting about these little hubs of life—places where errands mix seamlessly with leisure. My doctor’s office is nestled in a small mall, surrounded by restaurants, coffee shops, and even a cupcake store. My wife isn’t big on cupcakes, but I certainly am. And today, I just might reward myself with one.

Before my brain stroke, I never imagined I’d be visiting doctors so regularly. Back then, checkups felt optional—something you did when absolutely necessary, not something you scheduled like clockwork. Now? Every few months, I’m back in an exam room, getting my blood pressure, heart rate, and kidney function scrutinized. It’s not my favorite pastime, but I’ve learned to accept it. There’s no use questioning how important these visits are. They keep me informed, and more importantly, they keep me alive.

A lot of it comes down to choices—small, daily decisions that keep my health in balance. My wife and I eat in a way that supports my kidneys: more fresh produce, fewer processed foods, and carefully measured protein. I can’t just mindlessly grab a steak or overindulge in anything salty. Even something as minor as a cold or a slight miscalculation in my water intake can send my numbers in the wrong direction. It’s a delicate system, and I have to respect it.

That’s why I no longer mind these doctor’s visits like I used to. They aren’t just about checking boxes; they’re about staying ahead of problems before they spiral. I listen to my doctors, take their advice seriously, and adjust accordingly. It’s a partnership, not a battle.

Still, a little reward never hurts. After my checkup, I plan to take a detour to the cupcake shop nearby—nothing excessive, just a small indulgence to mark another successful visit. Because if there’s one thing I’ve learned, it’s that balance is everything. Taking care of my health is non-negotiable, but finding joy in the little things? That’s just as important.

So, here’s to another routine checkup, another step in the right direction, and maybe—just maybe—a well-earned cupcake at the end of it all.

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Coping with Unexpected Kidney Function Changes

Written June 25, 2024

Hello Dear Readers,

Yesterday went well overall, but I received some concerning news from my nephrologist. Either the labs were taken on an off day for me, or my already compromised kidney function has significantly declined. My log showed no anomalies, so my doctor thinks it was a bad day, possibly due to dehydration. I’m hoping that the previous tests were conducted on such a day. More blood and urine samples were taken to retest, and I should have an update in a few days.

Receiving news like this can be really disheartening. I keep wondering what could have caused the sudden drop in my kidney function. I’ve been doing my best to follow all the recommendations from my doctor. It might be that a recent change in my medication is having an unexpected adverse effect, so reverting to my previous regimen could be necessary.

Regardless, aside from ensuring I continue to do what I know I should be doing, there is little else I can control. My wife always reminds me not to worry about things beyond my control.

There are two things I can improve. I can improve my hydration by not eating more than one Ganoral bar daily. Sometimes, due to the heat, I feel more dehydrated than usual. My doctor mentioned that the Ganora bars I’m taking are protein-based, so he’s not overly concerned, even though I sometimes eat a few of them per day. I just can’t allow myself any excuses for not drinking enough water or over-indulging in snacks.