I Improved My Kidney From Stage 5 to Stage 3

Written on July 7, 2024

Hello Dear Readers,

Reflecting on the strategies my wife and I implemented to improve my kidney health, I recalled a piece of simple yet profound advice: “If you find yourself in a hole, stop digging.” For my kidney health, this meant addressing the issues causing harm. My primary problem was high blood pressure. A nephrologist explained its impact on kidneys by comparing it to spraying water through a paper filter at high pressure, which can tear the paper. Although kidney filtration involves more chemical processes, the tissues involved are delicate.

The hole was my blood pressure in my case. To manage my condition, we made some changes to my medications, selecting ones less harsh on my kidneys and organizing them in a medication box to ensure I wouldn’t forget a dose.

Our approach was threefold: medication, diet, and exercise. Regularly monitoring my blood pressure helped us evaluate the effectiveness of these methods and make necessary adjustments.

We worked with our doctor to adjust some of the medication I was taking after the brain stroke. Some of the medication I was taking was invasive to my kidney. 

Dietary adjustments were crucial. My wife, who usually uses minimal salt, helped reduce our sodium intake further. We also cut down on store-bought processed foods, opting for homemade meals. I needed to carefully monitor my intake of proteins and phosphorus, frequently consulting food lists to avoid them. Cheese and chocolate, which I love a lot, are also included. It is not that I cannot eat them completely, but I have to be mindful about eating them. Although this required some adjustments, it was more manageable than anticipated.

Exercise also played a significant role. After experiencing a brain stroke, my wife, a runner, encouraged me to take up running. She had recommended me before, but this time, she was very adamant about it. She loves digging into neuroscience books way before my stroke. She thought the key was some cardio that used my legs. This was in 2016.

Starting with just over a mile, I gradually increased my distance. We went to pick up a pair of good Nike running shoes that year. That was my first serious pair of running shoes. My wife said it was like a ritual. Surprisingly, the pair of good running shoes motivated me. I was surprised to find out how much shoes impact your running. I gradually increased my running, and now I can run 10km without problems. In the beginning, I did not initially enjoy running, but now I enjoy running. I grew to appreciate it as it aided my brain’s recovery.

When I suffered the brain stroke, I was diagnosed with stage 5 Chronic Kidney Disease, indicating severe damage with almost no kidney function remaining, necessitating my addition to the transplant list and starting peritoneal dialysis. However, nearly a decade later, with persistent efforts and lifestyle changes, my condition has improved to stage 3 Chronic Kidney Disease, and I am no longer on the transplant list. This journey has taught me that kidney health can be restored with dedication.

Fighting with Chronic Fatigue with a Compromised Kidney Condition

Written 6/21/2024

Hello Dear Readers,

Sometimes, despite my best efforts, I feel like I am coming up short. My body bears the brunt of this battle, feeling worn and tender with a mild, persistent ache across my muscles. My ongoing struggle with a kidney condition drains me, leaving me feeling like an empty shell—a zombie, if you will—utterly devoid of energy, craving nothing more than to remain motionless.

Then my thoughts drift back to last night. Even though I was physically spent, sleep eluded me. This isn’t a new ordeal; falling asleep has always been a monumental task for me, requiring intense focus—and ironically, when I’m exhausted, it feels as though I’m too tired even to sleep.

I can’t help but think that my physical condition is tied to these sleep challenges. Yesterday, for instance, I mowed the lawn, a particularly strenuous task. However, I managed to complete it without getting dehydrated, following my doctor’s strict advice to stay hydrated. 

Dehydration stresses my kidneys, forcing them to work overtime, so I conscientiously keep up my fluid intake. Sometimes, the heat in Nashville can be overwhelming. This June has been unusually hotter than usual, causing me to sweat excessively. The usual recommended amount of 1.5 liters of water isn’t sufficient anymore. This increase in heat and sweating means I’m likely not drinking enough water, leading to dehydration, which invariably makes it difficult to fall asleep.

Sleep, as we all know, is crucial. It’s become clear that I need to find better strategies to ease myself into rest. Being on numerous medications, I tread carefully around supplements or herbal remedies to avoid any potential interactions. My wife, who used to struggle with sleep herself, has found solace in meditation before bedtime. She was once a night owl, frequently battling to get some rest, but now, meditation helps her drift off quite swiftly.

Living with a kidney condition that leads to chronic fatigue is a constant balancing act. Every day, I have to be mindful of my physical activities, hydration, and sleep preparation. It’s a comprehensive approach, looking after not just my kidney health but my overall well-being. Managing this condition is not just about following doctor’s orders—it’s about adjusting my lifestyle to accommodate my body’s needs.

I’ve learned that self-care is not just a practice but a necessity. It involves listening deeply to my body’s signals and responding patiently and kindly. Whether it’s choosing to rest instead of pushing through another chore or remembering to hydrate diligently, these small decisions significantly impact my quality of life.

As I continue to navigate this journey, I find strength in the small victories—completing daily tasks without compromising my hydration, gradually finding what helps me unwind and rest, and learning from each experience. Living with a chronic condition isn’t just about managing symptoms. It’s about understanding and adapting to your body’s new limits and finding ways to live within them peacefully and productively.

To those who might be on a similar path, know that it’s okay to feel overwhelmed at times. It’s okay to feel like you’re not doing enough, even when you’re doing all you can. The key is exploring, adjusting, and finding what works for you. Patience, persistence, and self-compassion are your best tools on this journey.

Hydration Hacks for Outdoor Activities: A Personal Journey with Kidney Care

Written on June 7th, 2024

Hello Dear Readers,

Yesterday was a successful day in my ongoing battle against the ever-growing grass in my yard. As I pushed the mower back and forth under the sweltering sun, I made it a point to keep myself well-hydrated—a critical practice not just for my general health but particularly vital due to my kidney issues.

Hydration is essential for everyone, healthy or otherwise, but it becomes even more crucial when managing kidney dysfunction. While at a rehabilitation center, healthcare professionals emphasized the importance of drinking at least 2 liters of water daily. The kidneys play a pivotal role in filtering our blood and producing urine. Dehydration can lead to a higher concentration of minerals in your urine, which can crystallize and pose risks to kidney health. Ensuring adequate fluid intake helps the kidneys efficiently remove waste from the body.

Living in Nashville, where summer temperatures often soar above 95°F (35°C), staying active outdoors requires strategic planning, especially given my health condition. Whether running my regular routes or tending to my garden, I pause every 30 minutes to drink water. Although slightly disruptive, hydration breaks are non-negotiable for someone with kidney issues like mine. It takes a moment to muster the energy to continue my task each time, but maintaining optimal hydration levels is a top priority.

Despite the challenges, my kidney dysfunction doesn’t deter me from enjoying and engaging in outdoor activities. It’s all about adapting and finding ways to manage my condition while still living actively. This balance is crucial not only for my physical health but also for my mental well-being. Staying active and outdoors keeps me invigorated and connected to the world around me.

In conclusion, managing kidney health doesn’t mean you have to give up your active lifestyle. With the proper precautions, like regular hydration breaks, anyone can continue enjoying the benefits of outdoor activities. It’s about listening to your body, understanding its needs, and adjusting to support your health. This means venturing too far with a water bottle in hand and always planning for necessary pauses that allow me to stay hydrated and healthy.

Navigating Fitness Challenges with Compromised Kidneys

Written on June 2, 2024

Hello Dear Readers,

I’ve faced some real challenges with my exercise progress recently. After returning from Florida, I haven’t managed to up the weight in my curls.

I tire out quickly, and it’s taking me longer to bounce back from muscle soreness than it used to. The crux of the issue lies in muscle recovery. Given my compromised kidney function, I’m restricted to consuming just 35 grams of protein a day. There are times I wonder if my kidneys were healthier, could I increase my protein intake and, by extension, build more muscle? However, I’ve learned to work within my limits and maintain patience with my body’s pace.

Recognizing the importance of patience, I also realize the need for adaptation in my approach to fitness. Given my difficulties with muscle recovery, I’m contemplating introducing multiple weight-training sessions throughout the day. I’m considering adding a second set, perhaps before my evening meal. This idea has just been on my radar, primarily because I hadn’t found the right time or a consistent trigger for this addition to my routine.

Tomorrow marks the beginning of this new strategy. Following my usual run, I’ll get supper ready and shower. Then, I’ll perform a second set of weight training before I sit down to eat. This additional session is an experiment to see if increasing the frequency of my workouts can accelerate my progress.

Navigating the Challenges of Recovery and Daily Routines

Written 5/31

Hello Dear Readers,

Today, I lagged behind my usual routine due to an unexpected oversleep. Let me share how my day got off to a slower start. Exhaustion took hold of me last night, a remnant from hours spent mowing the lawn. It’s a taxing endeavor, especially when grappling with a compromised kidney function. Fatigue becomes a constant, unwelcome companion when your kidneys aren’t functioning optimally.

In my journey to recovery post-brainstroke, I’ve committed to regular exercise to boost my overall activity levels. This has indeed infused more energy into my days. Nevertheless, there are occasions when, despite a whole night’s rest, I feel unusually drained. Last night was such an instance. I went to bed on time, expecting sufficient sleep to recharge me.

I was awakened by my alarm this morning, ready to start the day. However, as I was about to rise, my wife initiated her post-run shower. My morning routine invariably begins with a bathroom visit, so I opted to wait for her to finish. Unfortunately, the coziness of my bed proved too seductive, and I drifted back to sleep.

This very scenario is why my occupational therapist has been adamant about the importance of maintaining a robust schedule and regular physical activity to strengthen my body’s endurance. It’s crucial for managing my health, particularly with my renal challenges.

Understanding the toll that kidney issues can take on energy levels, my wife is occasionally inclined to let me sleep a bit longer. To circumvent future disruptions, I plan to ask her to notify me when she’s done with her shower. Fortunately, today’s agenda is relatively relaxed, so this minor hiccup in my schedule should be manageable.

Moving forward, it’s clear that balancing my health needs with daily responsibilities will require some adjustments. It’s a manageable challenge that involves better communication and a little more planning. After all, maintaining a steady pace in life’s race can sometimes mean being flexible and adaptive to the unexpected.