Tag: Rehabilitation

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Journey of Resilience: Navigating Rehabilitation and Hope After a Stroke

Re: Rediscovering Myself After a Stroke: A Journey Back to Youth

 

Several weeks after Brian commenced his rehabilitation journey, we focused on improving his walking ability. The stroke had significantly weakened his muscles and robbed him of control over his legs and arms. Despite this, his brain retained the memory of movement, leading to a challenging phase where Brian would wake up at night, attempting to go to the bathroom as he used to, only to fall due to his weakened muscles. The frequency of these incidents at the rehabilitation center resulted in numerous calls from the facility, prompting Brian’s mother and me to stay with him overnight.

Brian’s frustration was palpable. At one point, he contemplated abandoning all efforts toward recovery. He was a perfectionist by nature, accustomed to meeting high standards independently. The stroke’s aftermath, which left him dependent on others for basic needs, was a source of significant distress. He expressed the extent of his despair, prompting a stern response from me that threatened to withdraw support if he gave up on himself—this moment of tough love proved to be a turning point for Brian.

Taking his rehabilitation more seriously, Brian and I began daily walks with the assistance of a walker. Initially, he required frequent rests, but after 16 months, he progressed to jogging, covering 1.27 miles on his first attempt. Recognizing the importance of proper footwear, I gifted him a pair of running shoes. We also discovered a running app named “Zombies, Run!” with a log function. I encouraged Brian to track his distance and inform me upon reaching 500 km, aiming to monitor the usage of his shoes. Additionally, we invested in a digital scale to measure his muscle composition, weight, and bone mass, which became a source of pride for Brian as he noted his gradual improvements.

Experiencing a stroke results in numerous losses, not just for the survivor but also for their family. Reflecting on Brian’s journal entries during this time evokes strong memories of our shared struggles. I wished I had read a journal like this back then.

My husband truly inspires me. With his permission, I’ve shared excerpts from Brian’s journal to offer hope and insight to others facing similar challenges. Recovery from a stroke is a slow process, but improvement is possible. For those supporting someone like Brian, it’s crucial to communicate hope and encourage perseverance. Never give up.

 

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The Paradox of “Luck” in Adversity

Hello, dear readers,

The notion of “luck” has always intrigued me, mainly when presented in the face of challenging circumstances. During my time in rehabilitation following the aftermath of a stroke, I was frequently greeted with comments on how “fortunate” I was to have emerged from the ordeal in the condition that I had. Hearing such statements always provoked mixed feelings within me. While I was grateful for my progress, branding my experience as mere luck seemed a bit off.

 

Think of it this way: surviving a lightning strike might seem fortunate, given the odds. However, the fact that one got struck by lightning in the first place arguably outweighs any perceived “luck” in surviving. In my eyes, I would have considered myself truly lucky if I hadn’t experienced the stroke at all.

 

The interpretation of luck extends beyond just my experiences. My wife, a dedicated professional, often receives comments about how “lucky” she is to have the knowledge and skills she does. Such remarks overlook the countless hours she’s invested in honing her expertise. Dismissing her achievements as mere luck undermines the dedication and hard work she has poured into her craft.

 

I don’t deny that there’s a specific element of fortune in my situation. Yes, things could have been much worse, and I’m grateful for the level of recovery I’ve achieved. However, it’s crucial to acknowledge that this recovery hasn’t been a mere twist of fate. My journey back to health has resulted from relentless effort, countless decisions, and the unwavering support of medical professionals and loved ones.

 

In conclusion, while luck may play a role in our lives, it’s essential to recognize and respect the hard work and decisions behind the scenes that often make the most significant difference.

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Overcoming Double Vision: My Post-Stroke Experience

Hello, dear readers,

After my stroke, navigating through various physical challenges became my new normal. Among these challenges, double vision was a prominent hurdle I confronted. Ironically, it wasn’t me who detected it initially. During my initial days in the rehabilitation center, my loving wife frequently enquired if there were issues with my eyesight. I was overwhelmed with anxiety and preoccupied with relearning basic body functions, so I hadn’t realized this additional problem.

Only after my return home did the symptom of double vision become undeniably evident. Eager to address this, I consulted an ophthalmologist specializing in treating stroke patients. To my dismay, she diagnosed me with a syndrome connected to weakened eye muscles. This led to a disconcerting misalignment, causing my eyes to struggle to focus on a singular point.

The prescribed remedy was a regimen of daily eye exercises, which she mentioned could benefit anyone with aging eyes. The foundational principle of these exercises was relatively straightforward. I would extend one arm, keeping my gaze fixed on one of my fingers. I gradually shifted my arm from side to side, ensuring my eyes constantly trailed the moving finger. This activity was sustained until a palpable strain in my eyes signaled the end of a session.

The true marvel was in the transformation this seemingly simple routine fostered. Within a few weeks, the vexing double vision I was grappling with began to dissipate. And soon, although not perfect, my familiar vision was back.

As I pen this down, I intend to share a personal anecdote and offer a beacon of hope. After all, with resilience and the proper guidance, it’s possible to overcome the challenges life throws our way.

Stay inspired, and remember, every challenge is an opportunity in disguise.

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Running Through Rehab: How I Built a Consistent Running Habit

I’ve been running regularly for the past five years. I began my current running program when we still lived in Portland, Oregon. My wife and I had been walking nearly every day since I’d been released from rehabilitation, and I felt I had progressed enough to try running.

A few years before this, I had attempted to get into running but hadn’t committed to it, but I had learned about the couch to 5k running program (c25k). I had enough commitment to maintain my running schedule and found an app for my phone, which allowed me to import some of my music into this program.

 

Couch to 5K (C25K) Program

C25k fit me quite well; it starts relatively slow with short-run segments with walking segments between them. Each week, the run segments get longer and the walk segments shorter. After five weeks, I ran for the entire time, about 5 kilometers. I went through this program several times, and each time, it got easier, and I got faster.

 

Zombies, Run!

Then my wife heard about a running app that was gaining popularity at the time, Zombies, Run! It’s an app that uses game concepts to motivate running. It’s set during a zombie apocalypse, and you play a character helping a small settlement of survivors by running. During each mission, you collect or deliver items while randomly acquiring materials to build your settlement. I found it quite interesting, and motivated me to run more and more to find out what happens next in the story.

After running 5k three times per week for a year, I was ready to push myself more, and I found an extension program by the same group that made the c25k program, which smoothed the transition from 5k to 10k using the same concepts of increasing the duration of run segments and shortening the walk segments. Again, this worked well for me, and I was proud of being able to run 10k. I won’t say it was easy, but it was possible.

 

An Added Challenge

I kept with this as we moved to Nashville, Tennessee; however, this move added a challenge to overcome. The average climate in Nashville is quite different from Portland. It is quite a bit warmer in Nashville, and I needed to keep myself hydrated while running. Luckily, my habit of counting steps helped me figure out a schedule for sipping my sports drink.

I use the schedule every 400 steps; I pause for a few seconds and drink. Conveniently, I discovered that 400 steps is roughly half a kilometer for me.

Now equipped with a rehydration schedule, I ran 5k nearly every day. It took me a while to get used to the new environment. After running 5k at least three times per week for a year, I aimed to push myself further by increasing my run distance by a kilometer each month. During the first month, I ran three 5k per week, then gradually increased to three 6k per week, and eventually, I was able to run 10k three times per week. My goal was to improve my endurance and speed.

 

1 Month: 3 x 5K (to get used to running)

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End: 3 x 10K

 

While I was faster at running 5k, I wasn’t as fast as I wanted to be, although I doubt I ever will be; however, as long as I’m getting better, I should be content with my progress. I repeated this sequence a couple more times and then set a new goal: I will run 35k per week for a year.

3x10k and 1x5k. Some weeks were harder than others, and I had to figure out how to balance my running schedule with other activities and impediments like weather.

 

I had to set up rules so every solution to a complication wasn’t ad hoc but part of a comprehensive plan. First, I made a goal statement: to run 35k per week. Then, I made a list of likely impediments, which included inclement weather and other obligations like birthday parties or doctor’s appointments. Scheduling appointments was easy since I set running days separate from appointment days.

 

The other complications were more brutal to balance, but I found that if I couldn’t juggle the days to fit my schedule, I could spread my anticipated missed days running over the other days so, instead of 3x10k + 1x5k, I could run 2x12k and an 11k. I was happy as long as I accomplished my primary goal of 35k.