From Level 5 to Thriving: My Kidney Recovery Journey

Written March 6, 2025

Hello Dear Readers,

Ah, the quarterly nephrologist appointment—an event marked on my calendar like a mini health report card. Today was the day.

Once upon a time (and not in a fairytale way), my kidneys decided to stage a dramatic exit, dropping to level 5. For those unfamiliar with the kidney hierarchy, level 5 means you’re not just playing the waiting game—you’re officially in line for a transplant. That’s when my recovery story began.

While waiting for a kidney that might never come, the doctors handed me a to-do list. First up: peritoneal dialysis. That meant getting a catheter—a thin, flexible tube—implanted in my abdomen. My wife, ever the rockstar, took on the role of my personal dialysis technician, administering treatments four times a day. Since dialysis waits for no one, she had to put her job on hold. Meanwhile, I was also dealing with double vision thanks to a stroke, just to keep life extra interesting.

Next on the list? A complete dietary overhaul. Protein—limited. Dairy—cautioned. Even seemingly harmless greens—monitored. And salt? Not a big loss, since we’ve never been big fans anyway. But the adjustments weren’t easy. Every meal felt like a science experiment in portion control and kidney-friendly nutrition.

Then, one day, my doctor hit me with a plot twist: “Well, your kidneys are somehow recovering.” Just like that, dialysis was out, the catheter came off, and my wife could return to work. We stuck to the diet, kept up with regular check-ups, and—miraculously—my kidneys climbed back up to level 3. No more waiting lists. Just a whole lot of monitoring.

That’s why I wear a special watch that tracks everything from my blood pressure to my heart rate. I also keep an eye on my weight because, with my kidneys, even small fluctuations can mean trouble. And speaking of health habits—my wife had the brilliant idea of introducing exercise. At first, even walking with a walker felt like an uphill battle. But we stuck with it. Over the years, the walker turned into casual strolls, which turned into steady jogging. Now, I run. A lot. And somewhere along the way, I traded in excess fat for a leaner, healthier body.

Of course, I still have to be extra cautious. A simple flu or cold can throw my whole system into chaos. But for the most part, I’m in control.

As for today’s appointment? Smooth sailing. My nephrologist gave me the green light—no major concerns, no urgent changes. I did bring up a small worry about my blood pressure occasionally dipping too low, but since my averages are stable, it’s a ‘wait and see’ situation.

The only hiccup? The waiting room. Nearly an hour before I got called in. But hey, patience is a virtue, right? Plus, I got my quarterly visit checked off without any surprises.

Next appointment? Another Wednesday—aka my running day. No problem, I’ll adjust my schedule accordingly.

For now, I’ll keep doing what I’ve been doing. Because somehow, against the odds, it’s working.